Integrating Art with Science to Advance Clinical Treatments for Huntington’s Disease 2017

Monday, May 22, 2017 4:00 PM - 8:00 PM

Integrating Art with Science to Advance Clinical Treatments for Huntington’s Disease

Monday, May 22, 2017

Watermark Country Club
5500 Cascade Rd SE
Grand Rapids, MI 49546

Check-in, Vendor Exhibits and Registration: 3 p.m.
Conference: 4 p.m. to 8 p.m. (Dinner is included with registration)

If you, or a loved one, are impacted by Huntington’s Disease please join us to learn more about how to sustain hope for the future and improve the quality of life at home and in the community. Topics will include genetic testing, rehabilitation treatments, the role of advocacy and how to access clinical trials.

Our keynote speaker, Jeff Carroll, PhD, is an accomplished scientific researcher who works tirelessly to find a cure for Huntington’s Disease. He will share his own personal life experiences with the disease, including heredity, reproductive decisions and his career evolution involving Huntington’s Disease research and clinical trials.

Target Audience
Those with Huntington’s Disease, as well as their families, rehabilitation professionals, genetic counselors, caregivers, spouses and advocates.

Learning Objectives
  • The learner will be able to describe the history, signs and symptoms of Huntington’s Disease
  • The learner will be able to identify the patient engagement projects in the Huntington’s Disease community
  • The learner will be able to identify and appreciate the progress of gene silencing trials in Huntington’s Disease, including discussion of preclinical data supporting these trials

Registration
Space is limited and registration is required. Registration fee is $10, dinner is included with registration fee.

For Additional Information or Assistance
For questions or for further information, contact Kathleen Delp at 616.391.8664 or kathleen.delp@spectrumhealth.org.


Cancellations
Cancellations received in writing by Friday, May 15, will receive a full refund. Send requests to kathleen.delp@spectrumhealth.org. Refunds will not be issued for no-shows or requests received after May 15.

Program Faculty
Maureen Morehead, PhD, was Kentucky’s Poet Laureate from 2011 to 2012 and is a faculty member of Spalding University’s Low-Residency MFA Creative Writing Program. Her sister, Susan Podshadley, had HD. She was a University of Louisville art graduate who received a MFA in painting from Pennsylvania State University. Susan died in 2016.

Keynote: Jeff Carroll, PhD, prominent scientific researcher in the field of Huntington’s Disease. As a son, husband, father, brother and scientific researcher, Jeff embodies the complicated intersection of roles within the dynamics of living in a family with Huntington’s Disease. He co founded HD Buzz, an online newsletter summarizing current research of clinical trials for the lay consumer. His family’s story was featured in the award winning documentary, “Do You Really Want to Know?” Dr. Carroll is Assistant Professor of Neuroscience, Department of Psychology, Western Washington University.

Timothy Thoits, MD, is a neurology hospitalist at Spectrum Health Blodgett Hospital with over 20 years’ experience working with Huntington’s Disease.

Kathleen Delp, LMSW, CGC, is a certified genetic counselor and clinical social worker with Spectrum Health. She coordinates the Huntington’s Disease pre-symptomatic testing program as well as a monthly Huntington’s Disease support group.

Michele Weaver, PT, is a physical therapist at Spectrum Health Rehabilitation Services located at the Integrated Care Campus - East Beltline in Grand Rapids.

Stuart Blatt, MA, PT, PhD, is a physical therapist with extensive experience treating patients with various neurological conditions. Dr. Blatt received his doctoral degree from Michigan State University and taught clinical neurology and patient management courses for the physical therapy department at University of Michigan-Flint.

Lea Norbotten MA, CCC-SLP, is a medical speech language pathologist at Spectrum Health. She has 18 years of experience working with individuals with a variety of neurological disorders in the acute care, inpatient and outpatient settings. She has multiple advanced certifications in the area of dysphagia. Lea is the lead speech language pathologist for Spectrum Health’s movement disorders and
neuromuscular disease programs, including the Deep Brain Stimulator, Parkinson Disease and ALS/ Neuromuscular Disease Clinics.

Kerri Vryhoff, OT/R, is a staff occupational therapist employed by Spectrum Health Rehabilitation Services. Kerri has worked as an Occupational Therapist with Spectrum Health for more than 20 years. She gained broad experience working with people who have neurological disorders in both in- and outpatient settings. Recently, she has specialized in the areas of visual-vestibular therapy and OT for movement disorders. Kerri enjoys collaborating with clients and families to work toward their goals in the context of “occupation” or meaningful activities.

This conference is sponsored by the Spectrum Health Foundation, Spectrum Health Neurology and Spectrum Health Medical Genetics.

WARNING: The status of this event has been changed to CLOSED.
Please contact your event organizer for additional information.
 Registration Was Closed on Thursday, May 18, 2017